I promised this blog wasn't just going to be all "oh wow, i had this amazing experience!" So, this isn't a negative post. This is a reality post of stuff i'm having to do at the moment to get places. It's not a moan it's a "This is what i've got to do." it might possibly help someone or it might just inform and make a few people who've never thought of stuff, aware of what i've got to do in order to just be free and go over to Canada for four months on my own.
None of what i'm doing is new. So many eople do this all the time...just thought i'd write it down. :)
To make things simple, and easier to manage what i tend to do when i'm planning anything (like most people) i break things down. Initially i break tasks i need to do, when it comes to "going places" into able bodied/non-able bodied stuff. So your normal "sorting phone, money..." which apparently sometimes people find stressful (seriously, i have to laugh when i see my friends getting stressed by this student finance lark...it is nothing compared to the extra i have to put up with!) Though...as i'm finding right now...it's an extra add-on!
So travelling as a paraplegic 19 yr old with a fringe...
Within Britain...easy. Just attach a wire to top of your boot and shove what you can in there and bam!
Not so simple across seas and continents and as many frank turner-type explanations i can explain my life with...
If you have meds, which admittedly i do, (mainly for acne) you've got to get them in bulk as we
(Britain) are blessed with the NHS and don't want to be paying full wack in another country. The amount i need to take isn't so bad, and if you go face to face to your surgery and say, as I did,"I'm Laura May, i'm going to Canada for 4 months on my gap year and i need that much supply for my medication that's on repeat prescription..." They're pretty good an are like "ok!"
(despite the NHS website saying that a Doctor can only supply 2 months...which proves, as usual, if you just "go for it" you can get it..)
Catheters anyone? i now use coloplast ones and let's face it, i wee a lot!
An interesting occurrence occurred yesterday...i called coloplast to explain and ask if i could get 4 months supply sent over. They're not allowed to...and i found out some really interesting stuff too! apparently a little box of 30 coloplast speedicath compact catheters is worth £50...so yes, i worked out that every time i go to the toilet, it is worth £1.67 (rounded up)...sad? Of course i am.
So...i could take 750 catheters over the sea and even more land...but what i'm going to do is get my parent to send them over in month-month supply through a courier as again, it would be so much cheaper than buying it when i get to Canada...£50 a week? C-razy!
So that's moving along...but then the interesting occurrence occurred when the lovely lady on the phone noticed that my GP hadn't payed for my prescription for the last few months and i luckily had enough to cover what i needed...otherwise i wouldn't have been able to get catheters. This has happened in the past and apparently happens a lot...it's all to do with the fact that instead of faffing around running back and to to the doctors and chemist i just call up chartered healthcare and they sort all that stuff and i get my catheters delivered the next day...which is great! it's just not when the "professionals" don't do what they should to make life easier...
Hopefully it will all be sorted and i think a renewal for my prepayment prescription certificate is on the cards...don't think i received my last one in the post...even though i did pay!
Oh and then there's the almost faff of trying to sort out getting an indwelling catheter...and needing a travel certificate as you know tubes on legs and stuff...i got a bit of hassle in belfast when they found my intermittent catheters let alone one attached!
So there's a tiny chunk of a day i managed to bundle an hours skiing, mcdonalds and a few rows of knitting into as well...things are getting there and all is good. I'm sad, i get a weird buzz out of getting stuff moving..but it's just me, and i'm lucky i can grab it and do it...
There's a lot more stuff to do!
Showing posts with label travelling. Show all posts
Showing posts with label travelling. Show all posts
Tuesday, 8 January 2013
Sunday, 15 April 2012
Back Up's youth advisory group: Our first event was a success!
Despite the first half of my Easter holidays allowing my head to form a fruitful relationship with a brick wall, the second half settled a quick, clean divorce with this situation.
I found myself driving down to London on Wednesday, the day after watching Steps at the MEN (amazing night!!) to organise and hold a "youth event" a Stanmore spinal unit. I ran this along with Sophie as part of our youth advisory group that we are pioneering for the amazing charity, Back Up. The event was a great success (so we were told, even better? :). It was all for under 18s with a spinal cord injury, their parents and their siblings. There were 4 young people with sci and with all their families it came to about 20 people. It basically turned into a family fun day, we had additional wheelchairs so everyone could have a go at the activities and it was interesting to see how certain siblings were experts…(I think some wheelchair stealing has been going on!)
I went to all the parents and asked for permission to film and take photographs for Back Up and for my extended project. They were all lovely and ok with it but you could tell they were nervous and unsure about their own and their child’s future, let alone the 3 hour event! I later found out that majority of participants were still in hospital with one only having been home for a week...
We started with a presentation about who we are (Jessie J reference ;), what Back Up has done, what Back Up does in general and what the Youth advisory group are aiming to do! As I was speaking I looked at parents and kids faces...I never thought a persons attitude and outlook on life could be physically displayed upon a person's face, until then! (And I've spoke in front of audiences many times, for many years...)
One parent who I remember being particularly nervous at the beginning was literally bouncing at the end and came over congratulating us, wishing us luck in our A levels as well as saying how she now knew her son would have a good life. I assured her that he would. That was the moment I realised "We'd done good!!!" and a lot of thoughts and a personal realisation of achievement came into my head...
I’d almost forgotten that feeling of thinking you had no future or worth on this planet. That exact feeling of not knowing where you would go or what you would do once you finally got “released”. The feeling of knowing that any expectations your friends, school, Mum, Dad and family had of you had completely fallen out into the enternal universe that is nowhere and it was your job to build them back up and do something...but you couldn't do anything because you had nowhere to go. Feeling trapped. Feeling alone. You feel alone. You feel like no one will ever understand what you're going through and all those that ever say they listen to you, don't really, they just want to feel like they've given a helping hand and done their bit for the day...I want to make sure that I never become that person. If I ever inspire, help or make someone realise they can achieve and be themsleves, I want them to know that I'm not a "do gooder", I'm just a believer. I believe in humanity and the power people have. I believe in myself. I believe in you.
I’ve experienced that feeling recently, in all honesty. That feeling of being alone with no one quite understanding you, and everyone undermining and assuming that you'll give in sooner or later. Well...I haven't done...and I still don't intend too! I’m doing what I'm doing and trying to get where I'm going because I want to and i'm be true to the person I am. That all comes from the ten year old girl up a tree, showing the boys who's boss while gobbing off to the headteacher...combined with the 11 year old girl who spend a year in hospital with babies and adults...I've felt the real world for all its harshness..now I'm tasting it. I couldn't cope with another 3 years of a bubble where people are just "talking"...so I'm doing and I'm inpsiring and making people realise they can be who they want to be no matter what life throws at them. I didn't have that help when I was 11, sat in a hospital, waiting for Doctor Who to start with Green Day on my personal CD player...but those families did...and for three hours at least, they got to taste, remember and re-realise how wonderful, though challenging, their lives and future will be.
I found myself driving down to London on Wednesday, the day after watching Steps at the MEN (amazing night!!) to organise and hold a "youth event" a Stanmore spinal unit. I ran this along with Sophie as part of our youth advisory group that we are pioneering for the amazing charity, Back Up. The event was a great success (so we were told, even better? :). It was all for under 18s with a spinal cord injury, their parents and their siblings. There were 4 young people with sci and with all their families it came to about 20 people. It basically turned into a family fun day, we had additional wheelchairs so everyone could have a go at the activities and it was interesting to see how certain siblings were experts…(I think some wheelchair stealing has been going on!)
I went to all the parents and asked for permission to film and take photographs for Back Up and for my extended project. They were all lovely and ok with it but you could tell they were nervous and unsure about their own and their child’s future, let alone the 3 hour event! I later found out that majority of participants were still in hospital with one only having been home for a week...
We started with a presentation about who we are (Jessie J reference ;), what Back Up has done, what Back Up does in general and what the Youth advisory group are aiming to do! As I was speaking I looked at parents and kids faces...I never thought a persons attitude and outlook on life could be physically displayed upon a person's face, until then! (And I've spoke in front of audiences many times, for many years...)
One parent who I remember being particularly nervous at the beginning was literally bouncing at the end and came over congratulating us, wishing us luck in our A levels as well as saying how she now knew her son would have a good life. I assured her that he would. That was the moment I realised "We'd done good!!!" and a lot of thoughts and a personal realisation of achievement came into my head...
I’d almost forgotten that feeling of thinking you had no future or worth on this planet. That exact feeling of not knowing where you would go or what you would do once you finally got “released”. The feeling of knowing that any expectations your friends, school, Mum, Dad and family had of you had completely fallen out into the enternal universe that is nowhere and it was your job to build them back up and do something...but you couldn't do anything because you had nowhere to go. Feeling trapped. Feeling alone. You feel alone. You feel like no one will ever understand what you're going through and all those that ever say they listen to you, don't really, they just want to feel like they've given a helping hand and done their bit for the day...I want to make sure that I never become that person. If I ever inspire, help or make someone realise they can achieve and be themsleves, I want them to know that I'm not a "do gooder", I'm just a believer. I believe in humanity and the power people have. I believe in myself. I believe in you.
I’ve experienced that feeling recently, in all honesty. That feeling of being alone with no one quite understanding you, and everyone undermining and assuming that you'll give in sooner or later. Well...I haven't done...and I still don't intend too! I’m doing what I'm doing and trying to get where I'm going because I want to and i'm be true to the person I am. That all comes from the ten year old girl up a tree, showing the boys who's boss while gobbing off to the headteacher...combined with the 11 year old girl who spend a year in hospital with babies and adults...I've felt the real world for all its harshness..now I'm tasting it. I couldn't cope with another 3 years of a bubble where people are just "talking"...so I'm doing and I'm inpsiring and making people realise they can be who they want to be no matter what life throws at them. I didn't have that help when I was 11, sat in a hospital, waiting for Doctor Who to start with Green Day on my personal CD player...but those families did...and for three hours at least, they got to taste, remember and re-realise how wonderful, though challenging, their lives and future will be.
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